Advanced Dementia Support


"Thank you to the care and support you gave my mum and to myself and sister during a very difficult time, you kept us going..." 


Referral Guidelines for Families and Carers

Betty Lucas, our Admiral Nurse, is here to support families and carers of those who are now living with advanced dementia.

Everyone who is living with dementia presents differently. We have put together some of the changes you may see when the person you are caring for is entering into the advanced stage of dementia.

• The person you care for may become more withdrawn and take less interest in their surroundings.

• They may have become less able to communicate with you or even appear unwilling to communicate.

• Changes to oral intake - eating or drinking less.

• Coughing when eating or drinking.

• Changes in mobility or no longer able to walk, walking more slowly or appearing bent over when walking.

• Increased falls/tripping.

• Unable to do tasks which were second nature - washing, dressing, feeding themselves.

• Increased infections for example urine infections or chest infections.

• Not responding to treatment and having shorter gaps between infections.

• Skin changes - colour changes or sores.

• Sleeping more during the day.

• Some people in the advanced stage of dementia can present with agitation for no visible reason.


What Does an Admiral Nurse Do?

Admiral Nurses provide specialist dementia support that families need. When things become challenging or difficult an Admiral Nurse will work alongside people with dementia, their families and carers: giving them one-to-one support, expert guidance and practical solutions.

The unique dementia expertise and experience an Admiral Nurse brings is a lifeline - it helps families to live more positively with dementia in the present, and to face the challenges of tomorrow with more confidence and less fear.

The Admiral Nurse will enable people who are living with advanced dementia, and who have specialist palliative care needs, to access the best quality of life and symptom management at the end of life.

The Admiral Nurse will work closely with the existing Hospice Team, community nursing services, and dementia services to identify the palliative care needs of family carers and people living with dementia on their caseloads, ensuring that they are appropriately reviewed in multidisciplinary meetings/practice meetings and linked into hospice services.

This service is offered to families and carers of people registered with a North Northumberland GP who have a diagnosis of Dementia and who have reached the advanced stage of their illness.


How Can an Admiral Nurse Help Me?

How can an Admiral Nurse help me?

• If communication becomes hard, an Admiral Nurse is on hand with skills and techniques to help you stay connected to the person you love.

• If someone with Dementia is showing signs of fear and distress, an Admiral Nurse will work with you to find the best ways of preventing or managing this.

• If your family is struggling to cope, an Admiral Nurse will be there to help you get the best possible additional care and support.

• If you have any questions you can’t get answered an Admiral Nurse will take time to really understand the problem and give you the expert support you need to tackle it.


HospiceCare North Northumberland
Hospice at Home and Wellbeing Centres
Alnwick & Berwick

Greensfield House, Willowburn Avenue, Alnwick, Northumberland, NE66 2DG

Telephone: 01665 606515

Berwick: 01289 309997

©2019 by HospiceCare North Northumberland. The North Northumberland Hospice is a company limited by guarantee.

Registered office: Greensfield House, Unit 3, Willowburn Avenue, Alnwick, Northumberland, NE66 2DG

Registered as a company in England No. 04925273. Charity No. 1103635